You have just been told that your child has Neuroblastoma cancer, the likelihood is that you have never heard of this strain of cancer before. Your life feels like it is not your own anymore, you no longer feel in control of your day to day routine, so let Mitchell's Miracles team ease your strife, were here to help.
Truthful communication is imperative to helping your child adjust to what is happening around them. It is important for a child to know that he/she is sick and will be getting lots of care and attention. As you explain the illness and its treatment, give clear and honest answers to all questions in a way your child will understand. It is also important to correctly explain and prepare your child for procedures which may cause pain, pressure, stinging or general discomfort. These procedures may feel frightening to both child and parent/carer but are all part of helping your child feel better and kept as comfortable as possible. It is important for kids suffering to know that they are not on their own and that there are people who love them and will be there for them.
Taking care of a chronically ill child is one of the most challenging and difficult tasks a parent/carer could ever face. Parent/carers play a huge role in how a child copes. A calm, loving, reassuring, positive parent/carer will help their child cope with the treatment much better. Beyond managing physical challenges and medical essentials, you will have to deal with your child’s emotional needs and the impact that a continued illness can have on the entire family.
There is no right or wrong way to feel under these circumstances. Most parents/carers find their emotions wavering over the course of their child’s treatment. These emotions may be unpredictable, some days you may feel you are coping and other days you may feel completely lost and out of control.
At first it can be difficult to come to terms with, as well as trying to understand, how this could be happening to you and your family. Painful emotions of anger, sadness, fear, guilt and denial are all common feelings when hearing this distressing news and it is normal to experience this emotional circle of heartache.
We all know that remaining positive is an important part of the healing process and parents/carers are usually expected to stay strong for their child, but when faced with the possibility of losing your child, staying strong is easier said than done.
Our support worker is here to help
Mitchell's Miracles Charity would like to take this opportunity to introduce you to our new Emotional support worker, Mrs Lisa Denison.
Lisa has worked with various charitable organisations and has extensive experience with helping families through the toughest times a parent/carer could endure when a child has been diagnosed with cancer. Lisa creates a non judgemental, empathic environment in which you will feel safe in sharing your most inner thoughts.
Lisa will be on hand to offer emotional support, welfare and benefit advice (seek and apply for), help you look for solutions, bereavement counselling, and signposting where necessary.
She has worked with the Local Housing and has successfully helped to rehouse several families, often finding grants to furnish their new homes, allowing them to feel safe and comfortable, so they can then concentrate on their child's cancer journey.
If you are needing support, please complete the short application form below.